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Dystonia Patient Brochure*
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Catalog excerpts

Dystonia Patient Brochure* - 1

Daily Victories Humanitarian Device: Authorized by Federal Law for the use as an aid in the management of chronic, intractable (drug refractory) primary dystonia for individuals 7 years of age and older. The effectiveness of this device for this use has not been demonstrated.

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Dystonia Patient Brochure* - 2

This brochure is intended to introduce you to DBS Therapy as a treatment for dystonia as well as what the treatment has meant to one dystonia patient. This story recounts the experience of one patient who is receiving Medtronic DBS Therapy (deep brain stimulation) to reduce the symptoms of dystonia.* Medtronic invited him to share his story candidly. Please bear in mind that the experiences presented are specific to this particular person. Not everyone who receives Medtronic DBS Therapy will receive the same results as the patient in this story; some people may experience significant...

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Dystonia Patient Brochure* - 3

Peter was implanted with a Medtronic DBS system. He had two neurostimulators implanted—one on each side of his body. He spent one night in the hospital when each one was placed. Since then, he has had the batteries replaced each year. “To me, the battery replacements aren’t a big deal,” he says. “The benefits enormously outweigh any inconvenience.” Risks of the Procedure and Stimulation Peter’s speech is slightly impaired, and he believes it is related to DBS Therapy. “It is very minor,” Peter explains. “Depending on my settings, I have some tongue issues that make it hard to say some...

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Dystonia Patient Brochure* - 4

Medtronic DBS Therapy Medtronic DBS Therapy (deep brain stimulation) received a Humanitarian Device Exemption (HDE) from the US Food and Drug Administration (FDA) in April 2003 for primary dystonia including generalized and segmental dystonia, hemidystonia, and cervical dystonia. It is indicated for individuals 7 years of age or older as an aid in the management of chronic dystonia when symptoms of the disease are not adequately controlled by medications. The effectiveness of this device for this use has not been demonstrated. (See Frequently Asked Questions for more information on an HDE.)...

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Dystonia Patient Brochure* - 5

Benefits of DBS Therapy for Dystonia Medtronic DBS Therapy for Dystonia may help control your (or your child’s) symptoms, but it is not a cure. When you turn on the brain stimulation system, it will deliver stimulation that may, over time, decrease some of your symptoms. Your symptoms will return when the system is turned off. Potential Side Effects and Risks DBS Therapy requires brain surgery. Risks of brain surgery may include serious complications such as coma, bleeding inside the brain, seizures and infection. Some of these can be fatal. Once implanted, the system may become infected,...

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Dystonia Patient Brochure* - 6

What is included with the Medtronic DBS system? The Medtronic DBS system includes three components, which are implanted completely inside the body: Lead 1. eurostimulator—A pacemaker-like device that is the power source for the system. It contains a small N battery and a computer chip programmed to send electrical pulses to control symptoms. 2. Lead—An insulated wire with four electrodes that is implanted in the brain. 3. xtension—An insulated wire placed under the scalp that connects to the lead and runs behind the E ear, down the neck, and into the chest below the collarbone where it...

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Dystonia Patient Brochure* - 7

What to expect during surgery The surgical procedure, the details of which may vary slightly from one hospital to another, takes several hours and comprises two stages. The first stage of surgery involves the placement of the leads in the brain. In some cases, your doctor may suggest the procedure only on one side of the brain. Although the placement of the leads is not painful (the brain itself has no pain receptors), you (or your child) may be given general anesthesia to minimize discomfort during the procedure. In the second stage of the procedure, which may occur on a different day, the...

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Dystonia Patient Brochure* - 8

Living with DBS Therapy DBS Therapy is a long-term therapy that requires both physician and patient involvement to be successful. You may not experience immediate symptom suppression from the therapy. It may take a few weeks to months after the procedure to attain maximum effect. Frequent, noninvasive adjustments to the stimulation parameters may be required to achieve optimal symptom suppression. This adjustment period may take weeks or months. Your doctor may require regular checkups to assure the proper operation of the neurostimulator system. During these checkups, your doctor may...

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Dystonia Patient Brochure* - 9

Learn more. Visit medtronicdbs.com Medtronic DBS Therapy for Dystonia: Patients should always discuss the potential risks and benefits with a physician. Indications: Unilateral or bilateral stimulation of the internal globus pallidus (GPi) or the subthalamic nucleus (STN) using Medtronic DBS Therapy for Dystonia is indicated as an aid in the management of chronic, intractable (drug refractory) primary dystonia, including generalized and segmental dystonia, hemidystonia, and cervical dystonia (torticollis), for individuals 7 years of age and older. Contraindications: Contraindications...

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